DMP: Selection and Preservation of data

[K-Beicher]

The retention for data is a minimum of 15 years, the plan is to add this to a joint Steno Database which under development. The retention for the biobank samples is currently to the end of the funding period but the plan is to set up a Steno Biobank before then where the ON LiMiT samples will be added.

As a general rule all data generated by or from participants will be retained and stored on GenomeDK's servers. There will be exceptions like log file etc.

Data collection for the feasibility study will take place over 13 months (12 months per participant), the window for the main study will be 2 years per participant, with last participant last visit expected to be in 2032.

As detailed in Documentation and Metadata a website will be set up to increase the chance of people outside the project being able to apply for access to the data. It is expected that in particular new colleagues of members of the study team will be interested in using the data.

It is the intention to make data available (pending an application for access) to a wider group of researchers once the main findings have been reported, as detailed in the Publications Guidance document.

We hope that all the data that we can't re-measure will be able to be stored on GDK servers for longer than the funding from NNF is running, alternatively be added to a joint Steno Diabetes Centre database.