Misc useful information

[lwjohnst86]

• Access to data through “forskermaskine” requires a valid authorization, usually given to only one person (often the head of department) per approved institution. Importantly, if even one researcher working under the institution's authorization breaches data confidentiality (through transferring microdata outside the “forskermaskine”), the access is closed for the entire institution, and in the worst case permanently. Therefore, the authorized institutions (and corresponding persons) are reluctant to give access to researchers outside their own institutions or close collaborators. Thus, DD2 is presently working on establishing legal procedures for data access for researchers from different institutions (national and international).
• File size of SNP/Genotyping/GWAS data: 0.000072MB per SNP per individual. So for 6,000 individuals and 1 mio genotyped SNPs: 0.4 TB. Also, approx 20 mio SNPs will probably be imputed, so times that by 20, and you get about 8 TB. This is for the planned GWAS 2. GWAS 1 is already available (first 3,000 participants and 500,000 genotyped SNPs, several mio. imputed) is maybe half that size, or smaller, so approx. additional 2-4 TB. Some references here and here.
• https://www.ohdsi.org/data-standardization/the-common-data-model/
• https://ropensci.org/blog/2022/06/14/communication-with-contributors-in-an-open-source-organization/

[lwjohnst86]

Not relevant anymore