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minor edits to lay description
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lwjohnst86 committed Jan 14, 2022
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<h1 id="lay-description">Lay description</h1>
<p>Many initiatives in clinical research, including the Danish Centre for Strategic Research in Type 2 Diabetes (DD2) initiative, have a hard time getting funds for building and maintaining needed software that make sure health science is the highest quality it can be. We aim to make software tools that are easy to use and that make it easier to do better research using data from DD2. We will share these tools widely and freely, so that as many research groups as possible can use it for their own projects. Not only will we build these tools to help researchers with managing and sharing their data, we also will create them with beginner-friendly documentation and training material to make sure more researchers use our tools, no matter their skill level. We believe that with these tools, science on health and well-being can become better, ultimately helping people with diabetes and society in general.</p>
<p>Many initiatives in clinical research, including the Danish Centre for Strategic Research in Type 2 Diabetes (DD2) initiative, have a hard time getting funds for building and maintaining needed software that make sure health science is the highest quality it can be. For this project, we aim to build software tools that make it easier to do better research, especially for managing and working with data. We’ll first be building these tools to help support the DD2 initiative.</p>
<p>We will be sharing these tools widely and freely, so that as many research groups as possible can use it for their own projects. Not only will we build these tools to help researchers with managing and sharing their data, we also will create them with beginner-friendly documentation and training material to make sure more researchers use our tools, no matter their skill level. We believe that with these tools, science on health and well-being can become better, ultimately helping people with diabetes and society in general.</p>
<!--
Interested in reading about this more? Check out [our
website](https://steno-aarhus.github.io/dif-project/) with a more detailed
description of our project.
-->
<h1 id="summary">Summary</h1>
<p>In clinical and health research, especially for small- to mid-sized research groups, funding for building modern, open source software infrastructures for managing and using data has been limited. This gap has naturally led to organizational challenges for managing existing and incoming data for many research initiatives, including the Danish Centre for Strategic Research in Type 2 Diabetes (DD2) initiative, a national research collaboration and database initiative established in 2010 with continual enrollment of persons with type 2 diabetes. The aim of our project is to close this gap by creating and implementing an efficient, scalable, and open source data infrastructure framework that connects data collectors, researchers, clinicians, and other stakeholders, with the data, documentation, and findings within the DD2 study. This will improve and extend the existing DD2 research infrastructure into an open national state-of-the-art research infrastructure that will provide easy and transparent access to this resource for researchers, clinicians and stakeholders, thus enabling excellent data science driven research. Furthermore, we will create this framework in such a way that other research groups and companies, who are unable to adequately invest in building infrastructures of this type, can relatively easily implement it, and modify as needed, for their own purposes. By building this framework, we have the potential to help propel research groups and companies across Denmark (and globally) to quickly getting updated on modern, scalable, and efficient approaches to working with data. Within the DD2 setting, an open, transparent, and easy access to this constantly growing resource has the potential of greatly improving the interest in, use of, and scientific impact of this resource, thus leading to substantial scientific and medical advancements, individualised treatment and improved human health in not only persons with type 2 diabetes, but population overall.</p>
<h1 id="background">Background</h1>
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<lastmod>2022-01-12T19:47:48-05:00</lastmod>
<lastmod>2022-01-14T10:44:05-05:00</lastmod>
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<loc>https://steno-aarhus.github.io/dif-project/LICENSE.html</loc>
<lastmod>2022-01-12T20:47:12-05:00</lastmod>
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15 changes: 12 additions & 3 deletions index.Rmd
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Many initiatives in clinical research, including the Danish Centre for
Strategic Research in Type 2 Diabetes (DD2) initiative, have a hard time
getting funds for building and maintaining needed software that make sure
health science is the highest quality it can be. We aim to make software tools
that are easy to use and that make it easier to do better research using data
from DD2. We will share these tools widely and freely, so that as many research
health science is the highest quality it can be. For this project, we aim to
build software tools that make it easier to do better research, especially for
managing and working with data. We'll first be building these tools to help
support the DD2 initiative.

We will be sharing these tools widely and freely, so that as many research
groups as possible can use it for their own projects. Not only will we build
these tools to help researchers with managing and sharing their data, we also
will create them with beginner-friendly documentation and training material to
make sure more researchers use our tools, no matter their skill level. We
believe that with these tools, science on health and well-being can become
better, ultimately helping people with diabetes and society in general.

<!--
Interested in reading about this more? Check out [our
website](https://steno-aarhus.github.io/dif-project/) with a more detailed
description of our project.
-->

# Summary

In clinical and health research, especially for small- to mid-sized research
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